Deaths remembered
The following memories detailing the deaths of friends,
family and loved ones, are a selection of those contributed
anonymously by visitors to Ars Moriendi and to the
website.
The death was my father's. It was a good one
in that it marked an end to years of suffering for him, both mental
and physical. Something he'd been wishing for a long time. I buried
him with one of his favourite films, Blazing Saddles, and a
television remote control, just in case. It was a private joke,
neither of us believing in an afterlife, but contemplating that if
there was one, it would be unbearable should there be a television
showing a lousy programme and nothing with which to change it.
I don't know, as I wasn't there. My sister and
I were kept away from a lot of the parts of death of our dad, as
family members thought us too young at 14 to be involved. I think
it was relatively peaceful at the end, but the process had been
horrible. Within 12 days of being diagnosed with cancer he died. My
overriding memory is of holding his yellow, clammy hand, wondering
what had happened to the person I knew. His personality and life
seemed to leave his body days before he died, so that in the end,
there was a sense of waiting for his body to stop, rather than
waiting for him, as a person, to die. Afterwards I would dream
occasionally that he hadn't really died at all, and that he'd just
left and had been living elsewhere. I was angry at him for not
telling us the truth. Over 15 years later, I still don't know if
being more closely involved with his death would have been better
or not.
I was not present when my grandmother died as
it happened so quickly, but this is the account as told to me by my
mother. My grandmother who was aged 83 and usually in good health
(she rode a bike and even helped deliver meals for Help the Aged
when most were a lot younger than herself). She lived with her
youngest daughter - my aunty. On this particular day she came
downstairs and into the living room where my aunty was and told her
not to be afraid. She then lay on the settee and died.... just like
that. Needless to say my aunty was distraught, but I take great
comfort in the fact that she knew what was about to happen and she
even had the ability to warn her daughter.
Once, one of my patients died, I was a junior
doctor a the time, and it was early morning hours, maybe 5 or 6
o'clock, he was a lovely old gentleman, bit lonely though and he
used to live on his own in a big house on the countryside, he died
of old age aggravated by kidney failure and slept in peacefully,
without much pain. He only had distant relatives who came to say
their last goodbye. When I entered the room, the corpse looked very
calm, the relatives greeted me and one of the nurses brought tea
and biscuits. We all sat down and ate biscuits and drank from our
cups of tea. I was telling them what I knew about this old departed
man and they told me a story about him. He had been stone-deaf for
years and living on his own, some burglars had taken advantage of
this fact by entering his home and stealing some valuables. They
even went into his bedroom were his was asleep but could not hear
them. We all a sudden looked at him and started to giggle, maybe it
was the early morning, the tiring nightshift, the strangeness of
having tea and biscuits with a dead body next to us, but it was a
warm and sympathising giggle, saying our last goodbye.
My grandmother. Every morning she would wake
up facing the sun in her window. Take a bath, go to her worship
room. Cook. Wait for her children and grandchildren to come back
from the playground. Have conversations with her family and
friends. Then she would sleep. No...none of this happened...but my
grandmother thought that it did. She no longer remembered her
children were old, her grandchildren were grown ups. Little clots
of blood inside the blood vessels in her brain...had made a limited
view of the world accessible to her. She was bed ridden. Had to be
assisted for everything. I would clean her sores. My mother would
feed her. Our helper would bathe her and dress her. But she was
oblivious to her condition...and whenever she was awake...she would
tell me with a smile… all the things she enjoyed in her ordinary
day. A year later, she passed away in her sleep. 83 years old.
A good life. A good death.
My father died suddenly aged only 48. My
brother and I were young at the time and the memory lingers on of
the police taking away his body in a bag. I found it all rather
harsh and unfeeling behaviour on their part.
My mother died in 2009. She was recovering from illness but
never regained consciousness. I do wonder if she had 'gone on' some
place and just didn't want to come back. The hospital care was
brilliant. We helped clean and lay out her body after she died
which was some comfort. I still miss her terribly.
In the end it was a peaceful and good death but we, the family,
had to negotiate with the medics in hospital to persuade them to
stop trying to keep my father alive artificially for a few pathetic
more minutes by insisting on rigging him up to uncomfortable and
invasive tubes and pumps. What exactly they thought was the point
is difficult to know, but it was the protocol.
I am trained in medicine. Two deaths in my
family were the worst experiences in my life. my mother's death was
sudden in New York. I was informed by the family and went there to
be with the rest of the members of the family. I was asked to do
the final rites which was traumatic and this still remains in my
mind and I have not gone through the grieving process. The second
was my brother who died of cardiac problem following a heart
transplant. The post surgical recovery was slow and stormy.
Following his death my mind is left with the feeling of despair on
the ethics and moral aspects of organ transplant.
My father died just a few months after he was
diagnosed with cancer. In those few months his illness took such a
toll on our family as we cared for him - sometimes by just ensuring
that someone else was always home with him - around the clock. In
his last days someone asked him, my sister, I think, if he wanted
to go home. We all knew he would be going home to die so what she
was really asking was whether he wanted to die at home or in the
hospital. My mother stood against us all and decided he should stay
in the hospital because we, the living, would need a place of
respite for ourselves. Her decision was unpopular but none of us
wanted to battle her on it. Our energies were spent worrying over
my father in his last few days. He passed away nearly 17 years ago.
I was never angry at my mother for her decision; the grief of the
immediate events overshadowed any capacity for that. Still, it took
me about ten years to realize what a gift my mother gave us by
sticking to her unpopular decision and how, ultimately, she was
already preparing to continue her life by making decisions to care
for the ones of us who would be left still living after my father's
death. That she was able to do this through her own sorrow will
always amaze me.
My father died in the Royal London Hospital
nearly five years ago. He was suffering from a long term illness
that had deteriorated his condition, requiring hospitalisation.
During his stay he grew weaker and the day before he died he was
starved for an investigation that never took place; this resulted
in him being unable to drink or take food. He was very scared and
thought he wouldn't survive the night. I thought he would be better
once he had rested, I thought the hospital would take care of him
and I would see him the next day. He died later that night, from a
heart attack. I wasn't there but my younger brother was. I arrived
too late to the hospital, I saw him dead. I had been out with a
friend and had been having a nice time, I hadn't heard the mobile
ring and missed my father's death. I let my father down, I let my
younger brother down. I should have argued for better care, I
should have been there with my younger brother when my father
died.
As a GP the good death is to feel included in
the patient and family's journey; to know everyone has had the
chance to just do a little bit more than they ever expected. It's
about being ready for it.
When I was about 16 my best friend's dad died.
It was about 4am when she called me crying to tell me and I just
kept on asking her, "But is he ok? Is he gonna be ok?" "No! He is
DEAD!" she said. And in the funeral (the one and only I've ever
been to) I saw him lying dead there and I kissed him goodbye 'cause
I felt as if he was still alive and the whole thing just felt
strange.
This was a death I didn't experience: my
mother was dying and I had 3000 miles to travel to be with her. I
didn't think the end was as close as it was. When I realised just
how short time was, I had to cancel the flight I'd booked for weeks
later and go immediately. I was about an hour too late. I came into
the bedroom where she lay and I sat with her quietly for a while,
and I said I was sorry. Sorry for not making it in time and sorry
for lots of other things, too. Her body was taken away about two
hours later. It was too quick.
My mother, who had a successful scientific
career at a time when few married women did, had been in a nursing
home for several months. She was increasingly troubled by dementia
and physical weakness. Family visited her most days, often reading
aloud as she had always loved books. Early on a Sunday morning I
was woken by a phone call from the nursing home advising me to come
quickly. I sat with my mother for about the last hour of her life,
holding her hand, talking to her, and promising to tell her story
to her great granddaughter, then a baby. I read to her from a
favourite natural history book, and said the Lord's Prayer. She
appeared neither conscious nor unconscious, so I did not know how
much she registered of my presence. The moment of death was
peaceful - I had to ask a nurse as I was not really sure it had
happened. I had been due to lead a church service that morning, on
the theme of remembrance. As part of this, I had already planned to
distribute photographs of flowers, taken from my mother's
photograph albums (there were so many that the family did not know
how to use them). I gave these to the colleague who took over the
service. I heard later that many people were moved by this and some
kept the photo long afterwards.
Both of my parents were over 90 when they
died, and I sat with each of them for their last hours. Each had a
peaceful death, without pain or distress. Sadly, however, each had
withdrawn from life gradually and increasingly over a period of
months. Neither was a person any longer, and neither was the parent
I had known.
My father is very ill and is being cared for
palliatively. He suffers from dementia. It is the slowest death
imaginable - he eats well, sleeps well, bathes regularly and takes
some exercise, all as a result of my mum's full time care and the
interventions of a small team of health and social workers. What's
not taking care of is his mental health. Watching and talking to
him, I think that he is ready to die, but, as frail as he is, he is
too healthy, and too well-looked-after for this to happen soon. I
love him very much.
My grandmother died the good death you
describe of your neighbour's journey. She was very old, 94, in
sound mind, yet her body decided it could work properly no longer
and shut down, organ by organ. I'm grateful it left her
mind until last in a way - she never did anything she didn't
want to do so I like to think that she had the time to come to
terms with her death in the last week or so of her life. I saw her
two days before she died and at that point, even though she
couldn't speak much, she could smile and laugh. How lovely that
laughter can outlive words. She seemed to know she was leaving and
she smiled her good-byes to us.
A customer at the wine shop where I worked
would come in twice a day, at the start of a dog-walking ritual, to
buy six cans of Stella Artois. It seemed like he wanted to share
his downwards spiral with the staff of the shop. On Christmas Eve,
during the busy peak of the day, he came into the shop,
incomprehensibly drunk, bellowing of the death of his dog. He died
later that evening, outside his house.
I suppose death is the direct result of the
body failing, but I hadn't imagined death to be the direct result
of a mind failing. A very good friend of mine (aged 21) thought her
best bet was to put her body under so much chemical strain that it
would fail. Her death was a result of depression, a bottle of
vodka, and dozens of painkillers. It's an instinct to be afraid of
death because we can't control its inevitability. She found comfort
in controlling it by causing it. A sound body cannot withstand
death without being coupled with a sound mind.
My mother was ill for 2.5 years but she was
able to be at home until her last two days. If we knew in those
last two days that she was dying, we would have kept her at home.
We are grateful that my mother was able to spend her time at home,
not in a nursing home, until she died at 91.
My father was admitted to hospital in
Newcastle in acute pain, and after emergency surgery was diagnosed
with metastatic bowel cancer. Immediately afterwards he suffered a
stroke which deprived him of the power of speech, and affected his
ability to write; this hitherto articulate man was suddenly almost
entirely unable to communicate. He remained in hospital because of
additional medical needs, but it was clear that he was terminally
ill. During the next five weeks, my brother and I travelled from
Scotland and London as often as possible, but it was obvious that
attention to his needs was sketchy - my abiding memory is of
sitting by his bed while he tried laboriously to write "I need a
shave", while two nurses sat on the adjacent radiator discussing
their Friday night out. We managed at last to get him moved to a
hospital in Scotland, nearer my brother. He was in a room on his
own, and treated with the utmost tenderness and compassion by all
the staff there, though by this time he was comatose. Knowing his
death was fast approaching, my brother and I sat with him. He had
been shaved, and his hair combed; as I held his hand, I noticed
that his fingernails had been cut. We were there when he died,
quietly and peacefully. I felt privileged to have been there, and
to have been able to say goodbye in a calm environment; above all I
feel so grateful that he had ended his life in a place where people
cared. His death could have been "better"; but unless we'd managed
to relocate him it would, I know, have been infinitely worse.
My mother was a nurse in the 1930/40s (in
Barts, Stowe School and as a wartime Sister at Hanwell Cottage
Hospital). When on her deathbed in Ealing Hospital in October 1991
being made 'as comfortable as possible as she is dying' as they
told me, I took in a photograph of her as a confident staff nurse
at Barts in the 1930s and put it in the small ward for all the
nurses to see. A few of days later she 'slipped away' whilst I had
gone home quickly to collect the mail, only to return to find her
personal nurse by my mother in tears. I comforted this nurse to say
that she had died in the good hands of someone in her own
profession before bearing my own grief.
I am 23 years old and the only death that I
ever experienced one at which I was 8 years old. I remember it very
clearly, seeing the body of my dead uncle in his coffin before his
burial.
My mother, in a caring hospice - the cancer
had returned after a six year remission. The year up to her death
was hard for her and her family: a constant round of hospital -
home - cottage hospital - home - home support with Marie Curie and
Macmillan nurses - hospice respite - home and finally hospice final
stay. She was well ready to die by this time but her body fought
on. Moved from the ward to a single room the staff were sensitive
and kind. She drifted in and out of consciousness. The last 24
hours myself my sister and younger brother were with her. Laboured
breathing - is she in any pain or is she past that? - let's make
sure. More medication. The gaps between breaths grew longer. We
held ours in solidarity but couldn't last as long as her. Was that
her last breath? No, another strangled gasp followed. And then a
gap. A long gap which grew longer. Is this it? Yes it was. My phone
rang. No time for reflection and quiet. Arrangements to be
made.
My father died at home from extensive cancer
started by prostate cancer. He and my mother decided he would not
have chemo or radiotherapy but just let the disease take its
course. He had three good years after diagnosis followed by about
six months of increasing pain which was controlled by a morphine
pump. He attended my sister's wedding and then took to his bed. He
died three weeks later at home with my mother and I holding his
hands and my sister on the phone. I think this was a good death. He
was 77 years and 7 months old. He had survived 6 years fighting
during WWII. He had five adult children and several grandchildren.
We all had time to get used to the idea of his death and were ready
when it came.
When my grandmother died my parents were
having a party with our neighbours. She had been in an old people's
home for a long time and I hardly remember the time when she was
not ill. But I can still recall her brushing my hair when I was a
little girl. I was about eleven years old when my aunt called to
tell that she was about to die. Me and my father jumped into the
car and went to see her. The journey was horrible: We were both
silent, hoping to be there before she would pass away. By the time
we arrived, she had died. I just couldn't believe she had gone
without saying goodbye. My grandfather and my aunt were sitting in
her room, my grandmother was lying in her bed, her eyes only
half-closed, there was a towel under her chin, my father explained
to me that it stopped her jaw from falling down. She looked scary
and her hands were still a bit warm when I touched them. They got
colder and colder with time. It was the first time I had seen a
dead body and I just couldn't understand how there could be no life
in it. Although the woman who brushed my hair and went to the
playground with me ,who I loved and looked up to was lying right
next to me she was gone and would never come back.
My husband did not have a good death, he
fought it hard. He hated getting old, the stiffening of the joints,
diabetes, high blood pressure et al. He was taken ill with end
stage metastatic liver disease and died six months later having
just celebrated his 80th birthday. At first it was the digestive
system that packed up, he lost control of his bowels and couldn't
eat what he wanted without throwing up, then the disease reduced
his muscles to thin strips, making him housebound then bed bound.
His fine engineer's mind failed him, he forgot telephone numbers.
To him, the Hospice was a prison, he fought the end stages of life
for three days. Nobody did anything wrong he had the best possible
care from the NHS, the voluntary sector and friends and family. It
never occurred to him once during his life that he would ever have
to leave the stage, when his brainstem finally gave up all that was
left was his body, the wonderful nurse, me and a powerful sense of
outrage as something had imploded. I admire him for being himself
to the end, I think I am too polite to do the same.
I believe that our perception of death is
based upon our perception of life and whether the person dying has
lived a fulfilling existence and reached old age. My grandfather
died very suddenly when I was 13. He had not been ill, but was a
heavy smoker and died of hardening of the heart arteries. He
collapsed whilst making a cup of tea and his heart simply ceased to
beat. He would have felt no pain or recognition, so this was
considered a good way to end with no suffering. However, he was 66
and throughout my adult life I have mourned that he did not live to
see me or my sister grow up, nor did I have the opportunity to have
an adult conversation with him. By contrast his wife, my
grandmother, lived until 89. She was very astute, with an avid zest
for books, film and current affairs. When she died it seemed the
natural conclusion to a wonderful existence. Sadly she died in
terrible pain over a prolonged period, which was awful to witness,
but when the end came it was as though she herself had given up on
life. I felt blessed to have known her and felt that she truly
understood and loved me too, as I was 42 at the time. My
grandfather had a good death with no pain, but had a shortened
life. My grandmother had a long time with her family, but an
agonising end, so which one is the good death? I look at the joy
that my grandmother had until the last two years and I think I
wouldn't mind suffering at the end if the life in between was rich.
I believe this more than ever now that my sister is battling cancer
again. She has battled the disease for 20 years and life has been a
constant rollercoaster of remission and return. If she were to die
aged 49 I would feel truly robbed of all that she achieved and
could have accomplished. Death young is never a good death, so
ultimately I believe it is the age of the person that defines
whether death is good or not.
My grandmum died when I was around 11. The
memory I keep for the following 6 years is the one of my grandad
living alone at their house. He used to smoke cigarettes the whole
day while looking through the window and, although we went to visit
him every week and worried a lot about his health or needs, he
would always say with a smile in his face: "The only thing I would
ask you is to bring my wife back, but I know this is impossible. I
am perfectly fine and do not need anything." And this was true. He
was looking so vigorous and healthy that my parents could hardly
believe it. One day he would go to sleep not to wake up again. The
previous day we had had seen him and he was perfect. No complaint.
Smile on the face. Cigarette in the hand. The doctor said that he
would have said he "died of old", but that was not a medical term
any more. His heart simply stopped beating when he was 90 years.
That is all. In the funeral my father was sad. But we were all
happy inside because we knew he had had the best death any of us
would have liked. No pain, no sorrow, no more things to live. Just
a night to sleep.
2 deaths in December 2010. One expected and
one unexpected and traumatic. A good death from whose perspective?
Is there a good way to loose someone? What occurs to me about death
is about the possible contrast between observer and observed in the
process. What I have seen is the contraction of the dying person's
world and the diminishing connection between inside and outside.
Some of the images you are creating are very stark in their
medicalisedness and I can only hope that the dying person can free
themselves from these shackles that are all too apparent to the
observer when circumstances dictate that this is a necessary part
of someone's ending. In witnessing my friend's dying days I saw her
struggle to avoid admission to a hospice and when she finally
succumbed to it how it brought her relief and a feeling of "being
Marilyn again". There was no ability to prepare for my ex-husband's
death and the shock and horror of this has left all those who loved
him stunned and gradually trying to piece together an understanding
of what has happened with no possibility of ever really knowing the
answer. Maybe a good death is about remaining as fully alive as
possible in the time we each have and in remaining close and
loving, as best we can, during the final letting go.
My uncle had died on New Year's Day, and he
hadn't left a will other than saying he wanted to be buried with as
little damage to the environment as possible. His family decided to
give him a Humanist burial. One very cold foggy morning in February
we all met on a hillside and buried him in a wicker basket. The
place then planted a tree above him. It was a significant moment
because it made me a) make a will and b) request a Humanist
burial.
My nanna died of leukaemia when I was 7, she
was in her 50s. We'd been very close, I was the only granddaughter
she had in her lifetime (many more followed, and
great-granddaughters too). She'd been in hospital for a long time
but it was still a shock when she died. My parents picked us up
from school and my mum got angry with my dad because the car
overheated on the way and we didn't get there before she'd gone. We
went to see her in the morgue, it didn't really look like her
anymore and they'd wrapped her in pink, which was a colour she
hated. My mum got them to change it for her favourite green
tracksuit. I decided not to go to the funeral, which I regret now.
I stayed with some neighbours who were looking after my youngest
brother Aidan. He was 6 months old, and doesn't remember her at
all. Afterwards everyone came back to the house and it shook me to
see all the adults I'd relied on and assumed to be omnipotent
looking bereft and vulnerable. I grew up a lot that day. Twenty
years later, Aidan got leukaemia too, but that's another story.
I held the hand of my grandmother throughout
the last night of her life. Was she sleeping, half conscious, aware
of my presence? I could not tell. She constantly moved her arms in
waves of what, to me, seemed agony. She moaned and I tried to sooth
her by holding her hand lightly - moving with her; by sometimes
saying something; also by making suggestions that it would be all
right now. In the morning her arm movements had lessened. My
parents were on their way. The doctor arrived and gave my
grandmother more morphine - in her agreement to lessen her pain
towards the end of her life. He did not explain much to me. Yet,
when I said she had hardly slept he went into the corridor with me
so that she would not be disturbed. More and more the movement of
my grandmother subsided. When my parents arrived she was barely
responding. Yet, she must have recognised her daughter and shortly
after my mother had spoken to her and had caressed her, my
grandmother let go completely and died.